Sunday, November 29, 2015

Found a New Doctor.....

Woot Woot!

I am pleased to announce that I've found a new Gyno-Oncologist, with the help of my cousin's spectacular husband (who also happens to be a doctor) and she is WONDERFUL!  I left her office feeling like a million bucks, which is no small feet considering what occurs during those visits.

On November 18th I headed down to Utah, from up here in Idaho, because I had a bit of business to take care of in the valley.  My oldest made the trek down with me and I have to say, I have raised a hilarious kid.  We laughed non-stop as we traversed I-15 with my parents house as our destination. We arrived in the evening and settled down for a bit of a rest.  It was lovely to know that my younger two were being looked after by my husband and my lovely step-daughter.  I only worried minimally about them (because we're Moms and we are incapable of ever not worrying completely, right?).

Friday morning came far too quickly, and my mother and I boogied on up to St. Mark's hospital in Salt Lake City, where they have a center known as: Monarch Women's Center.  This is one of the offices that Dr. Z does business in, and while the hospital is easy to find, the women's center was a bit tricky.  I drug my poor mother all over creation before we finally made our way into the front door. Once we found it, I realized how ridiculous I had been.  If you're going down 3900 South, it's easy to cruise past it if you're not sure where to look. It is on the north-west corner of the block that St. Mark's sits on.  If you know that- you're sure to find it easily.

I was so nervous about a new doctor that we got there mega-early and had to wait for 30 minutes for the office to open.  Hooray for good company and comfy chairs by the elevator.  We were quickly checked in, once it opened, and patiently waited for my appointment time of 9:00 a.m. to arrive.  The staff at the Monarch Women's Center are super friendly and really fun- which made it less nerve-wracking than before when I've waited for doctors.

Suzie, her nurse, came to snag me and my mother and soon we were in a treatment room that had butterfly panels and sunny skies in the ceiling, instead of the stark, white, electrical lights that are so typical.  There was also a chair, instead of the "assume the position" table.  Say what?!  Here is what was most refreshing.....are you ready for it?.......

Dr. Z came in and talked to me- face to face, like a human being prior to asking me to change.  It makes me a bit emotional just thinking about it.  It was not a clinical "Let's discuss your medical history and get down to it" conversation.  It was a "Wow, you've been through quite a bit in the past few years, how are you?" kind of discussion, and man was that refreshing.  She also talked about some possible links in my medical history that was wonderful as well.  After getting to know each other for a bit she left the room so I could change into the sheet ( a real sheet people, not a paper sheet).  *As a side note: I wore leggings and a tunic to this appointment, which made it super easy to peal off those leggings, with my lower extremities still covered, and it was comfy. I highly recommend this, if at all possible, for these types of visits.

When she came back she asked me to kindly place my feet in the "foot rests," not the "stirrups" as most doctors refer to them as, and then she began the exam.  I'm not going to lie: IT HURT.  It was really nice of her to warm up the speculum (or the duck) and she was as gentle as she could be, but between the frontal and the rectal check- for the love- it was a bit much! I held on to my dignity until she and Suzie left, then shed a couple of tears and got dressed.  It was really nice to have my mom there to give me a few pats on the back.  She also apologized for the pain, which I thought was sweet of her since it was in no wise her fault at all.  Moms are the best!

After I was dressed, Dr. Z came back and sat down with me again to explain how things are looking. While I was as diligent as time allowed with the dilator, my vaginal canal is scarred shut at the top. She thinks it may even have scarred at an angle, which makes it impossible to see my cervix.  It's playing a lovely game of hide-and-seek at this point.  However, while she was examining me, she did her best to break up some of the scarring, which lead to quite a bit of bleeding.  She told me that my area is considered a "functioning vagina"- which makes me giggle just a bit and think of a second hand car- ha ha!

I would someday like to go back to having a "fully functioning vagina" but only time and more dilator action will tell.  My husband seems fine with a Ford Pinto rather than a Lamborghini, so I guess all is well in that area.

I walked away with a nice pink pocket that had a new medical dilator enclosed, after much discussion about commercial dilators and their various colors and "options." This whole conversation took place in front of my mother, who did not cease to impress Dr. Z with her ability to hold her own with this topic- and even threw out a few zingers herself regarding commercial dilators.  The pink pocket was tucked into a purple gift bag, that was topped with purple tissue paper as a disguise so that no one would discover the nefarious tool that was encased within.  I was told to use said tool to try and open the scarring in the canal as it would need to go to the left, with pressure, to the right, with pressure and then gently pushed forward.  The alternative is to use a local anesthesia and cut along the scarring bands to open up that area, in order to see the cervix once more.  No thanks! I'll try the "tooling" method first!

The last good news that I was given as we were about to leave, was that I am now on the 6 month rotation for check-ups! Hallelujah!   I was also told that cervical cancer has a peak re-occurrence of 3 years post-treatment, which means that my risk of redeveloping cervical cancer has dropped drastically.  I am still a carrier for the two separate strains of the HPV virus, but with careful monitoring and check-ups, I will never have to go through any cancer treatments again. C'mon- happy dance with me will ya?!

Thank you for checking in with me, for supporting me, for praying for me and for being rock solid through this whole journey.  I am forever grateful! I'll see ya'll in 6 months!

Saturday, September 12, 2015

On the road again.....

Yep! It's happened.  I've moved and with said move must now find a new oncologist.  I can honestly say that I'm just peachy with this as my former one refused to utilize the lavage method (which means to wash or flush a cavity with saline solution) in order to get a clear pap.  The last appointment he claimed it was unnecessary, though former tests proved otherwise.  And thus, I was without adequate cells to get a clear test result.  Argh!!!!

So I am on the search again.  Luckily this time, I have some friends (thanks cousin!) who know people.  I shall soon be traipsing down to the University of Utah (Go Utes!) to get my insides scraped in hopes that I finally get a clear reading on where I stand.  I should still be on the 3 month test rotation, but the rapid change in circumstances has kept me from keeping my calendar as I should.  I really do want that 5 year title of SURVIVOR!!

In the meantime- I will again be calling my insurance company to find out their procedure and re-acquainting myself with said protocol so that I don't get caught unawares by the medical/insurance industry.

Hopefully everyone reading has had their yearly or has it scheduled.  It's a must my friends.  If we don't take care of ourselves....who will?!

All my love,

Sunday, February 22, 2015

By way of updates....

Hello everyone!! I bet you thought I'd fallen off the planet, right?  Thankfully this is not what happened.  I've been working through transitioning from one insurance to another and now am set for my annual duck walk.
On February 25th I'll once again find myself in the stirrups awaiting inspection.  I'm not exactly running towards that date, by any means, but it is nice to make sure that all is well in the southern hemisphere.
With that being said, I will definitely make sure to post results and the likes when they come in.  In the meantime, I say we all focus on the lovely weather (or at least it is lovely here in Arizona) and find someone to make smile in the upcoming days.
Always - Kami